2/ Jonas Bergquist says: "... the board is recommending 'graded exercise therapy', GET, despite clinical research showing that it mostly doesn't work and could be harmful to post-infection patients groups as ME-patients." #LongCovid#ChronicFatigueSyndrome#MEcfs#CFS#PwME

Euractiv: "New guidelines for Swedish doctors criticised for putting patients at serious risk" An article in English I’ve seen recommended about the recent and controversial guidelines for post-infection patients. www.euractiv.com/section/heal...#MEcfs#PwME#LongCovid 1/

New guidelines for Swedish doctors criticised for putting patients at serious risk

The National Board of Health and Welfare in Sweden is under fire for its new guidance on how to treat patients with long-covid or other post-infection syndromes. Critics say these could put patients a...

2/ "The #LongCOVID#POTS#MyalgicEncephalomyelitis#ChronicFatigueSyndrome#MEcfs#CFS#PwME

For anyone interested in the pathophysiology of MECFS there’s a nice infographic here from this article; www.jci.org/articles/vie... LOTS more research needs to be done of course. In clinical practice the vascular dysregulation is something I very much recognise 🧵

I do support the drive to cure #mecfs, obviously. But rn I'd honestly settle for people in the medical professions all understanding: a) that it exists, b) that it is of physiological, not psychological etiology, and c) that even so-called "moderate" mecfs is a serious, life-altering disability.

Solve ME/CFS Initiative: Solve has successfully advocated for new #MECFS#LongCovidow.ly/XvNq50Txuz6

New pre-print from Germany: Effect of Immunoadsorption on clinical presentation and immune alterations in COVID-19–associated ME/CFS www.medrxiv.org/content/10.1...#LongCovid#MEcfs#CFS#PwME

You can learn all about this and more in the video series I made exposing the entire #MedicalScandalm.youtube.com/playlist?lis...#pwME#RecognizeME#MECFS#LongCovid#Disability#ChronicIllness#Disabled

Out now, our New in Brief post for w/c 23rd Sept. Find headlines and links to further reading for #MECFS#LongCovidwww.s4me.info/threads/news...

News in Brief - September 2024

This thread has a Science for ME 'News in Brief' post for each week in September 2024 by a team including @Trish, @Kalliope, @ahimsa and @SNT...

Und jeden Tag daran erinnern! #dieMaskebleibtAuf#CovidIsntOver#LongCovid#MECFS#MultiorganErkrankung#auchAndereschützen1Grüner