2/ Jonas Bergquist says: "... the board is recommending 'graded exercise therapy', GET, despite clinical research showing that it mostly doesn't work and could be harmful to post-infection patients groups as ME-patients." #LongCovid#ChronicFatigueSyndrome#MEcfs#CFS#PwME

Euractiv: "New guidelines for Swedish doctors criticised for putting patients at serious risk" An article in English I’ve seen recommended about the recent and controversial guidelines for post-infection patients. www.euractiv.com/section/heal...#MEcfs#PwME#LongCovid 1/

New guidelines for Swedish doctors criticised for putting patients at serious risk

The National Board of Health and Welfare in Sweden is under fire for its new guidance on how to treat patients with long-covid or other post-infection syndromes. Critics say these could put patients a...

2/ "The #LongCOVID#POTS#MyalgicEncephalomyelitis#ChronicFatigueSyndrome#MEcfs#CFS#PwME

New pre-print from Germany: Effect of Immunoadsorption on clinical presentation and immune alterations in COVID-19–associated ME/CFS www.medrxiv.org/content/10.1...#LongCovid#MEcfs#CFS#PwME

You can learn all about this and more in the video series I made exposing the entire #MedicalScandalm.youtube.com/playlist?lis...#pwME#RecognizeME#MECFS#LongCovid#Disability#ChronicIllness#Disabled

@exceedhergrasp1.bsky.social#pwme you don't need a rando mansplaining your illness. My wife has been through hell... that doesn't give me the right to lecture you. I just get het up by medical articles that downplay mecfs. Sorry.

And these things sometimes overlap. Not to mention that there are many people with (internalized) ableism prone to victim blame others. And, tbh, also many LC folk dismissive of #pwme, and sometimes of what they have learned over time.

Bluesky's Top 10 Trending Words from the Past 10 Minutes: ️⚠️💨14 - ferrantorrescitizenheadlinergcfgerardparájairflickramalho (tap/click to see all posts on Bluesky featuring that word!) #ListenToBlackVoices

I hope you're getting good advice. We ultimately dropped out of the facebook / twitter mecfs conversation because #pwme were coming to blows over best practice. To quote Kate: it's depressing. 🥺

We owe it to the severe and very severe #ME#RecognizeME#MECFS#LongCovid#chronicillness#DisabilityRights#MedicalScandal#pwME