2/ The patient organisation RME later wrote on Facebook that this resulted into a constructive conversation which they hope can continue. Link with automated translation: www.s4me.info/threads/swed...#MEcfs#PwME
I posted about this issue in the News from Scandinavia thread last week, but as things keep unfolding I think it deserves its own thread. A massive...
The newspaper Enköping-Bålstad in Sweden wrote an article about ME patients protesting outside the county council in Stockholm against lack of treatments. Politicians met with the protestors. Link with automated English translation: www.s4me.info/threads/swed...#MEcfs#PwME#CFS 1/
I posted about this issue in the News from Scandinavia thread last week, but as things keep unfolding I think it deserves its own thread. A massive...
2/ Jonas Bergquist says: "... the board is recommending 'graded exercise therapy', GET, despite clinical research showing that it mostly doesn't work and could be harmful to post-infection patients groups as ME-patients." #LongCovid#ChronicFatigueSyndrome#MEcfs#CFS#PwME
Euractiv: "New guidelines for Swedish doctors criticised for putting patients at serious risk" An article in English I’ve seen recommended about the recent and controversial guidelines for post-infection patients. www.euractiv.com/section/heal...#MEcfs#PwME#LongCovid 1/
The National Board of Health and Welfare in Sweden is under fire for its new guidance on how to treat patients with long-covid or other post-infection syndromes. Critics say these could put patients a...
New pre-print from Germany: Effect of Immunoadsorption on clinical presentation and immune alterations in COVID-19–associated ME/CFS www.medrxiv.org/content/10.1...#LongCovid#MEcfs#CFS#PwME
You can learn all about this and more in the video series I made exposing the entire #MedicalScandalm.youtube.com/playlist?lis...#pwME#RecognizeME#MECFS#LongCovid#Disability#ChronicIllness#Disabled
@exceedhergrasp1.bsky.social#pwme you don't need a rando mansplaining your illness. My wife has been through hell... that doesn't give me the right to lecture you. I just get het up by medical articles that downplay mecfs. Sorry.
