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ME/CFS San Diego
@mecfssd.bsky.social
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
78 followers10 following17 posts
Reposted by ME/CFS San Diego
TKtomkindlon.bsky.social
Reposted by ME/CFS San Diego
AYthatandromeda.bsky.social

They...cured lupus??? www.nature.com/articles/d41... I mean. It's a hella intense, sci-fi treatment, and we're talking only a dozen or two patients, but they have actually knocked down four different autoimmune diseases here and it...works??

ā€˜Itā€™s all goneā€™: CAR-T therapy forces autoimmune diseases into remission
ā€˜Itā€™s all goneā€™: CAR-T therapy forces autoimmune diseases into remission

Engineered immune cells, most commonly used to treat cancers, show their power against lupus and other immune disorders. Engineered immune cells, most commonly used to treat cancers, show their power ...

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Reposted by ME/CFS San Diego
TKtomkindlon.bsky.social

Systems thinking, subjective findings and diagnostic "pigeonholing" in ME/CFS: A mainly qualitative public health study from a patient perspective Full text (in German) www.thieme-connect.de/products/ejo...#MEcfs#CFS#PwME#MyalgicE#ChronicFatigueSyndrome 1/

Screenshot of abstract
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Reposted by ME/CFS San Diego
MNmecfsnews.bsky.social

PrecisionLife, Action for ME, and the MRC Human Genetics Unit have been awarded an Advancing Precision Medicine grant by Innovate UK to improve diagnosis & treatment of ME/CFS and Long Covid. precisionlife.com/news-and-eve...

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MSmecfssd.bsky.social

ME/CFS San Diego is partnering with the UTC Kendra Scott for a for sips, sweets, and Shop for our Cause event on Friday, December 15 from 4:00 to 6:00pm. There is also an online giveback code set for 48 hours, from 12/15/2023 through 12/16/2023 is GIVEBACK-ESQYE.

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MSmecfssd.bsky.social

"we may request evidence from other acceptable medical sources, such as psychologists, both to determine whether the person has another MDI(s) and to evaluate the severity and functional effects of CFS or any of the person's other impairments." Any other diseases SSA uses psychologists?

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MSmecfssd.bsky.social

youtu.be/278vwGkFXRM PolyBio Fall 2023 Symposium

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MSmecfssd.bsky.social

event.roseliassociates.com/me-cfs-resea... Registration is available for all the NIH ME/CFS Research Roadmap Webinars!!!

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Reposted by ME/CFS San Diego
TKtomkindlon.bsky.social

5/ FIGURE 2. Post-exertional malaise (PEM) From: Diagnosis and Management of #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (Grach et al., 2023) www.mayoclinicproceedings.org/article/S002... #MEcfs #CFS #PwME #LongCovid #PwLC #postcovid #postcovid19 #LC

FIGURE 2. Post-exertional malaise (PEM)
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Reposted by ME/CFS San Diego
TKtomkindlon.bsky.social

6/ TABLE. Management considerations for ME/CFS based on symptoms. From: Diagnosis and Management of #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (Grach et al., 2023) www.mayoclinicproceedings.org/article/S002... #MEcfs #CFS #PwME

Table Management considerations for ME/CFS based on symptoms.
Symptom	Management considerations
Post-exertional malaise	Pacing/rest, stimulus reduction, tracking devices or diaries for symptoms
Fatigue	Pacing, low-dose naltrexone, low-dose aripiprazole, anti-inflammatory diets, supplements, vitamin deficiency treatment
Sleep issues	Melatonin, trazodone, suvorexant, doxepin/tricyclic antidepressants, gabapentin/pregabalin
Cognitive dysfunction	Journaling, memory aids, occupational therapy, low-dose naltrexone, low-dose aripiprazole, careful use of stimulants
Orthostatic intolerance	Fluids/electrolytes/compression, fludrocortisone, midodrine, propranolol, pyridostigmine, guanfacine (best guided by postural orthostatic tachycardia syndrome subtype or tilt vital signs)
Dizziness (frequent)	Consider persistent postural-perceptual dizziness diagnosis, vestibular therapy, low-dose selective serotonin reuptake inhibitor or serotonin-norepinephrine reuptake inhibitor
Muscle or joint pain
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MS
ME/CFS San Diego
@mecfssd.bsky.social
ME/CFS San Diego, a 501c3 public charity, is working locally to raise awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), to help educate healthcare workers and researchers, to increase access and support for ME/CFS patients.
78 followers10 following17 posts