One of the more frustrating aspects to functional neurological disorder is that it's destroyed my understanding of symbols as words. Like the equal sign with the strike through it that means "no" that people have in their bios--I can't interpret that. It's frustrating with lab work. 1/ #NEISvoid

As a half-blind person, alt-text is especially helpful to be able to read people’s screenshot text images when the thing is in small print. As an artist, I’d rather share & see the work of people able to describe their stuff visually. #NEISvoid#disability 😑

#Scandal#ChronicLoafHyperbeam.com/v/ChronicLoaf#Criptober#neisvoid#MutualAidMarathon#insomniabinge

⚠️ URGENT RENT 🚨🏳️‍⚧️ $55/610 due by midnight CST Only $555 to go! I'm disabled by long covid, and I'm fighting a disability claim denial. I've got 2 disabled kids who need a safe place to live. Please help us! 😭🙏💕💸 Paypal.me/anyaphenix#helpsky#medsky#disability#rent#neisvoid#pwLC

S1E1 of #KaijuNo8#ChronicLoafHyperbeam.com/v/ChronicLoaf#Criptober#KaijuChaos#NEISvoid

Finally at the lab for those tests to check my thyroid. I'm the only person in the waiting room and the receptionist is masked. This is the immunocompromised version of winning the lottery. #NEISvoid

ICYMI: Another doctor reveals her interpersonal--I'll be nice--mediocrity. It had been a while, so I guess statistically I was due. You don't see doctors as frequently as I do without spotting one of these in the wild. #NEISvoid#ChronicIllness#Medsky#AmBlogging

EDemilysuess.comOct 3, 2024 1:45pm

Still blogging about it. Still thinking about it. emilysuess.com/2024/10/03/s... #NEISvoid #ChronicIllness

Surgeon General's Warning: Medical Fundamentalism Can Be Hazardous to Your Health

In some doctor's offices there's a false binary where you're either a good patient or a bad patient: medical fundamentalism

If i could feel human for like AN HOUR that would be great. (I have a shitton of Halloween shoot ideas, but I’m also sick of feeling like shit) #NEISvoid

uuugh I had to call for medical results (normal) but the hold music was scratchy and sent me over the edge, still working on getting my body to come back down. thank goodness for nature photography on the bluesky #NEISVoid

Ever heard of the #neisVoid? (If so, posting for the lurkers.) Existing chronic illness communities have been doing this a long time. We have relevant knowledge & resources, especially the ME/CFS community.