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Dan Murphy
@bungdan.bsky.social
Ex Journalist Bloomberg/FEER/CSM. Southeast Asia, particularly Indonesia, then Iraq/Egypt with a smattering of everywhere else. Same handle over at Mos Eisley Spaceport. Made wine for a few years. Now training a blue heeler in the CA foothills.
1.8k followers268 following5.1k posts
DMbungdan.bsky.social

Amazing achievement, but the NPR piece I listened to on this yesterday said the per treatment cost will be in the millions of dollars.

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NCgeographer.bsky.social

The NYT piece also mentions that, and does raise the point of very high upfront costs, both financially and health wise, but in juxtaposition to a lifetime of care and pain with current methods.

New treatments like the one that was endorsed on Tuesday are expected to cost millions of dollars per patient, though Vertex has not yet said what it will charge. But lifelong care for patients with the disease is also enormously expensive, costing the health care system an estimated $3 billion a year.

It’s not yet clear how many people will seek the new therapy. The new therapies are also not easy to endure and come with hardships for patients, who will have to undergo chemotherapy and spend more than a month in the hospital. Family members are affected too — they may need to take time off work during the most intensive phase of the treatment.
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Reading further about this, it would seem that the company has not yet decided how much to charge at retail for treatment, though millions may be their current cost.

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That’s helpful to know, if really unfortunate

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DM
Dan Murphy
@bungdan.bsky.social
Ex Journalist Bloomberg/FEER/CSM. Southeast Asia, particularly Indonesia, then Iraq/Egypt with a smattering of everywhere else. Same handle over at Mos Eisley Spaceport. Made wine for a few years. Now training a blue heeler in the CA foothills.
1.8k followers268 following5.1k posts