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Caroline
@carolinemoore.bsky.social
Author of Punk Rock Entrepreneur and the upcoming Burnout and the Cult of Busy. Designer, photographer, amateur violinist. WAHM, BAMF, MFA. South of Pittsburgh. www.hellocarolinemoore.com
195 followers107 following1.1k posts
Ccarolinemoore.bsky.social

Iā€™m existentially exhausted by how hard it is just to move my body around right now.

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Ccarolinemoore.bsky.social

Some of these drugs take months to feel any effects, which also means itā€™s months before you know if itā€™s NOT working. Treating this disease means a whole lot of wasted time, even when things are moving along.

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Ccarolinemoore.bsky.social

Iā€™ve been off of the rinvoq for almost 3 months, which means my dumb immune system is beating the shit out of me. But hey, whatā€™s another week while you guys get the shit together that youā€™ve had three weeks already to do, right?

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Ccarolinemoore.bsky.social

He says ā€œnow that medicine you were on was working well before, right?ā€ My friend, my brother in Christ, my guy, we had an entire goddamn office visit about this. Why did we bother to do that if youā€™re not going to read your notes?

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Ccarolinemoore.bsky.social

Results from a scope. I *thought* he meant theyā€™d figure that out while I was waiting on said scope, so that as long as it was clear, we could get moving on starting a new med because that process is forever taking. So I told them the scope was clear, letā€™s go.

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Ccarolinemoore.bsky.social

Had my usual rheum appointment and told them that even though the rinvoq was amazing for my RA pain, I had some unsustainable side effects with it, and very sadly would likely have to try a new med. I see the PA, so he said heā€™d discuss with the main doctor, and theyā€™d get back to me after I gotā€¦

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Ccarolinemoore.bsky.social

They may have to do it at a pediatricianā€™s office. Our pharmacies donā€™t do vaccines for kids under, I think, 4 years.

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Ccarolinemoore.bsky.social

Man walks down the street in a hat like that, you know heā€™s not afraid of nothin.

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Ccarolinemoore.bsky.social

That sucks. I just had to stop taking a medicine thatā€™s done the best yet for my RA pain, because it made it so that I could barely eat and I got sick on it constantly.

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Ccarolinemoore.bsky.social

I imagine it works better if you donā€™t TELL everyone heā€™s a rental?

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C
Caroline
@carolinemoore.bsky.social
Author of Punk Rock Entrepreneur and the upcoming Burnout and the Cult of Busy. Designer, photographer, amateur violinist. WAHM, BAMF, MFA. South of Pittsburgh. www.hellocarolinemoore.com
195 followers107 following1.1k posts