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cbme-mark.bsky.social
@cbme-mark.bsky.social
Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK.
27 followers33 following43 posts
Ccbme-mark.bsky.social

Appeals to reason and compassion having failed, maybe public shaming might work…

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Ccbme-mark.bsky.social

When I’ve been at my lowest, what’s stopped me ending my life is the possibility that something may turn up. In all the complexity of human nature and the unpredictability of experience, something new may happen. So far it always has, though it’s been a damn close run thing.

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Ccbme-mark.bsky.social

Hi Linda! Who else we know is on here?

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Ccbme-mark.bsky.social

The coroner will indeed be submitting a section 28 report to the DHSC and NHS England. While the Royal Devon Hospital has put together a team to manage very severe cases, it was clear this is based on inadequate knowledge. A national approach drawing on expert advice is needed.

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Ccbme-mark.bsky.social

I see that a Dr Simon Williams is quoted as saying it is “strange that more had not been done to clean indoor air and improve ventilation in public spaces including schools.” I really couldn’t agree more.

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Ccbme-mark.bsky.social

That seems to be why the nanoneedle has made such slow progress. I believe there’s finally a replication study in progress at Imperial?

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Ccbme-mark.bsky.social

I really enjoyed listening and I appreciate your insistence on scientific rigour. The problem is money. Ron Davis told me that since he started applying for ME research funding just 1 out of 27 has succeeded. Before that he’d never had an application refused.

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Ccbme-mark.bsky.social

Yup. The MuskX has become too toxic.

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Ccbme-mark.bsky.social

Hi!

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C
cbme-mark.bsky.social
@cbme-mark.bsky.social
Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK.
27 followers33 following43 posts