🧪A child born with Cystic fibrosis in the ’50s could expect to live until age 5. In the early 2000s, age 35. With Trikafta, those who begin taking the drug in early adolescence, a recent study projected, can expect to survive to age 82.5—an essentially normal life span.
The disease once guaranteed an early death—but a new treatment has given many patients a chance to live decades longer than expected. What do they do now?
I can't stop thinking about this. My spouse's sister died at like 28 somewhere around 2005 and I can't stop thinking about how I could have known her
Yeah, my 30s SIL was on death’s door a few years ago, waiting for a lung transplant and on oxygen. She then got onto trikafta (covered by the province now thank god) and her recovery has been almost miraculous. Off the transplant list, no more oxygen, and she actually just had a baby last year!
We should be shouting this from the rooftops.
Big Pharma is a mixed bag but stuff like this makes me lean to the 'pro' side I think they've done more good than harm on balance
One of my friends is one of the few that Trikafta doesn’t work for, it’s heartbreaking to see everything but a cure for your disability and still be left behind by it. It’s a godsend to the vast majority of CF patients though.