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JR
Jan R. Boehnke
@jrboehnke.bsky.social
I work at the School of #HealthSciences, University of Dundee & as a #NightshiftEditor Interested in measurement, (health-related) quality of life #HRQL, multimorbidity, #ResearchEthics, publishing models, #PeerReview & research assessment
321 followers424 following339 posts
JRjrboehnke.bsky.social

Really glad how our symposium around Leah McClimans' book " #PatientCentered#Measurementglobal.oup.com/academic/pro...#ISOQOL#HRQL

Symposium 4:
Patient-Centered Measurement: Perspectives from philosophy and health-related quality of life

Moderator and Discussant:
Leah McClimans, PhD, University of South Carolina, Columbia, South Carolina, United States

Patient-reported measurement is the idea that patient perspectives should play an evidentiary role in determining how effective a drug is taken to be, the degree to which a hospital provides good quality care or improvements in patient-clinician communication. This idea may sound prosaic, but in fact it’s nothing short of revolutionary. It says, patient views matter – not as an afterthought, and not only at the bedside, but in the nuts and bolts of creating our evidence base, and thus in health-care decision-making. But patient-reported measures present a puzzle: How can measurement, which relies on standardization, represent patient perspectives, which, if not idiosyncratic are at least various and changeable? This tension is explored in Patient-Centered Measurement (McClimans, L 2024, Oxford University Press) a recent book that combines philosophy and conceptual questions from HRQoL research. This symposium brings “all different together” four HRQoL researchers and four philosophers into dialogue with one another as they discuss their different perspectives on four chapters of this book. This symposium thus creates a multi-directional dialogue: between HRQoL researchers and this text, between HRQoL researchers and other philosophers, and between the HRQoL community and philosophical concepts.

Individual Presentations (order of appearance)
Melanie Hawkins
Sebastian Rodriguez Duque
Jan R. Boehnke
Alessandra Basso
Richard Sawatzky
Leah McClimans
Kevin Weinfurt
Rebecca L. Jackson
Picture of a woman (Leah McClimans) holding a mic, standing behind a lectern, and pointing to a screen on which the title of the symposium is presented:
Patient-Centered Measurement: Perspectives from philosophy and health-related quality of life

And the individual presenters (here in order of appearance)
Melanie Hawkins
Sebastian Rodriguez Duque
Jan R. Boehnke
Alessandra Basso
Richard Sawatzky
Leah McClimans
Kevin Weinfurt
Rebecca L. Jackson

And the book front of Leah McClimans' book
Patient-Centered Measurement
Ethics, Epistemology, and Dialogue in Contemporary Medicine
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JR
Jan R. Boehnke
@jrboehnke.bsky.social
I work at the School of #HealthSciences, University of Dundee & as a #NightshiftEditor Interested in measurement, (health-related) quality of life #HRQL, multimorbidity, #ResearchEthics, publishing models, #PeerReview & research assessment
321 followers424 following339 posts