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JR
Jan R. Boehnke
@jrboehnke.bsky.social
I work at the School of #HealthSciences, University of Dundee & as a #NightshiftEditor Interested in measurement, (health-related) quality of life #HRQL, multimorbidity, #ResearchEthics, publishing models, #PeerReview & research assessment
340 followers455 following352 posts
JRjrboehnke.bsky.social

10/x Thanks for reading in case you made it this far. I noticed that I forgot speakers' affiliations in some of the posts, so please find here again the abstract. And once again links to the book global.oup.com/academic/pro...rdcu.be/dXACh#HRQL#ISOQOL#PhilSky

Patient-reported measurement is the idea that patient perspectives should play an evidentiary role in determining how effective a drug is taken to be, the degree to which a hospital provides good quality care or improvements in patient-clinician communication. This idea may sound prosaic, but in fact it’s nothing short of revolutionary. It says, patient views matter – not as an afterthought, and not only at the bedside, but in the nuts and bolts of creating our evidence base, and thus in health-care decision-making. But patient-reported measures present a puzzle: How can measurement, which relies on standardization, represent patient perspectives, which, if not idiosyncratic are at least various and changeable? This tension is explored in Patient-Centered Measurement (McClimans, L 2024, Oxford University Press) a recent book that combines philosophy and conceptual questions from HRQoL research. This symposium brings “all different together” four HRQoL researchers and four philosophers into dialogue with one another as they discuss their different perspectives on four chapters of this book. This symposium thus creates a multi-directional dialogue: between HRQoL researchers and this text, between HRQoL researchers and other philosophers, and between the HRQoL community and philosophical concepts. Melanie Hawkins, PhD, Swinburne University of Technology, Melbourne, Australia Sebastian Rodriguez Duque, PhD Candidate, McGill University, Montreal, Quebec, Canada Jan R. Boehnke, PhD, School of Health Sciences, University of Dundee, Dundee, United Kingdom Alessandra Basso, PhD, London School of Economics, United Kingdom Richard Sawatzky, PhD RN, Trinity Western University, Langley, British Columbia, Canada Leah McClimans, PhD, University of South Carolina, Columbia, South Carolina, United States Kevin Weinfurt, PhD, Duke University School of Medicine, Durham, North Carolina, United States Rebecca L. Jackson, PhD, Durham University, Durham, United Kingdom
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JR
Jan R. Boehnke
@jrboehnke.bsky.social
I work at the School of #HealthSciences, University of Dundee & as a #NightshiftEditor Interested in measurement, (health-related) quality of life #HRQL, multimorbidity, #ResearchEthics, publishing models, #PeerReview & research assessment
340 followers455 following352 posts
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