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keri
@keristars.bsky.social
I love museums and history. ★ bed-tethered disabled! AuDHD, hyperPOTS, MCAS, and ME/CFS. ★🧑‍🦽★ I miss traveling and being in nature and sewing. location: Jacksonville, Florida (agender ace ey/em/eir)
454 followers178 following12.8k posts
Kkeristars.bsky.social

for #SevereMEDay, a cautionary tale: it can creep up on you, or it can come fast. I was in a loop of PEM, not allowing myself to fully recover to baseline before triggering another crash. the difference between my summer and winter 2021 is stark. Rest, rest, rest. Care for yourself now, not later.

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❤️ ❤️ ❤️

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ABannbehemothhh.bsky.social

My biggest help with pacing: The app Visible. It is mostly but not always congruent with my self-assessment. So when I feel bad I ignore it and rest, if I feel good I have a look if it warns me and heed the warning. Works great.

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K
keri
@keristars.bsky.social
I love museums and history. ★ bed-tethered disabled! AuDHD, hyperPOTS, MCAS, and ME/CFS. ★🧑‍🦽★ I miss traveling and being in nature and sewing. location: Jacksonville, Florida (agender ace ey/em/eir)
454 followers178 following12.8k posts