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Royal Free 1955
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. rfh1955.blogspot.com/
156 followers151 following81 posts
RFrfh1955.bsky.social

www.bbc.co.uk/news/article...

Why is there poor care for ME?
Why is there poor care for ME?

What is NHS care like for people with severe ME, also known as chronic fatigue syndrome?

1
AGandrewgiffordphoto.bsky.social

UK Gov doesn't properly fund ME research. NICE policy a decade behind private practice. NHS won't adopt what private practice uses (v.safely) in absence of large trials. NHS won't fund proven supplements etc. Benefits are a pittance. Our lives waste away while these institutions wring their hands.

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RF
Royal Free 1955
@rfh1955.bsky.social
ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. rfh1955.blogspot.com/
156 followers151 following81 posts
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