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Tom Kindlon
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 35 years, severe ME 30 years. @IrishMECFSAssoc trustee 27 years 26 publications in peer-reviewed journals Social media: me-pedia.org/wiki/Tom_Kindlon
1.2k followers69 following3.3k posts
TKtomkindlon.bsky.social

🧵 CW: Death of a #PwMEvirology.ws/2024/07/27/t...#MaeveInquest#MEcfs#CFS 1/

Trial By Error: Maeve Boothby O’Neill Inquest Highlights Major Systemic Failures at UK’s National Health Service and in Medical Education 22 Comments / By David Tuller / 27 July 2024 By David Tuller, DrPH Heartbreaking. Infuriating. Mind-boggling. Those three adjectives are as good as any to describe the testimony heard during the first week of the two-week inquest into the death of Maeve Boothby O’Neill, 27, being held in Exeter, a university town in southwest England. Deborah Archer, the no-nonsense assistant coroner who has kept firm control of the proceedings, issued her own succinct summary before the lunch break on Friday. “It has been an emotional and grueling week for everyone,” she said.
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TKtomkindlon.bsky.social

2/ CW: Death of a #PwMEvirology.ws/2024/07/27/t...#MaeveInquest#SevereME#MyalgicEncephalomyelitis

Equal blame goes to the UK’s medical and academic establishments, which have spent decades promoting the discredited view that ME (and CFS, and what is now often referred to as ME/CFS) is a psychiatric or psychological condition that is treatable and even curable with interventions like cognitive behavior therapy or an exercise program. This bogus perspective has been based on the views of a powerful cabal of prominent physicians and investigators who have conducted deeply flawed research; astonishingly, this crap science has been published in the most prestigious journals and accepted as legitimate by every authoritative body and institution in the country. It is a remarkable case of “emperor-has-no-clothes”-ism.
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TK
Tom Kindlon
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 35 years, severe ME 30 years. @IrishMECFSAssoc trustee 27 years 26 publications in peer-reviewed journals Social media: me-pedia.org/wiki/Tom_Kindlon
1.2k followers69 following3.3k posts
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