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Tom Kindlon
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 35 years, severe ME 30 years. @IrishMECFSAssoc trustee 27 years 26 publications in peer-reviewed journals Social media: me-pedia.org/wiki/Tom_Kindlon
1.2k followers69 following3.3k posts
TKtomkindlon.bsky.social

An update I received today. I'd encourage people to sign up to this Open Medicine Foundation @openmedf.bsky.social#Fibromyalgiawww.omf.ngo/studyme/#MEcfs#CFS#PwME#LongCovid#FMS

Dear StudyME Registry Community Member,

We deeply appreciate your involvement in the OMF StudyME Registry and are excited to share some updates with you. Thanks to your support, we now have over 10,400 participants, and our numbers continue to grow daily!

We are thrilled to report that more than ten esteemed researchers from leading universities have reached out to us for assistance in recruiting participants for various studies. These include registries, biobanks, surveys, and on-site research projects. Your participation is crucial in accelerating our urgent quest for a cure.

As new opportunities arise that match your interests and location, we will be sure to inform you.

Together, we are making strides towards our shared goal of expediting recovery for all. Thank you for being a vital part of this journey.

Warm regards with hope for all,
Linda Tannenbaum
Founder & CEO/President, Open Medicine Foundation
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TK
Tom Kindlon
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 35 years, severe ME 30 years. @IrishMECFSAssoc trustee 27 years 26 publications in peer-reviewed journals Social media: me-pedia.org/wiki/Tom_Kindlon
1.2k followers69 following3.3k posts