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Tom Kindlon
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 35 years, severe ME 30 years. @IrishMECFSAssoc trustee 27 years 26 publications in peer-reviewed journals Social media: me-pedia.org/wiki/Tom_Kindlon
1.2k followers69 following3.4k posts
TKtomkindlon.bsky.social

Following recent inquest into Maeve Boothby O’Neill's death, the coroner has written a Regulation 28 Prevention of Future Deaths Report Screenshot from Science for ME update Everything in blue is a clickable link www.s4me.info/threads/news...#SevereME#MEcfs#CFS#PwME

UK inquest Prevention of Future Deaths Report Following the recent inquest into the death of Maeve Boothby O’Neill, the coroner, Deborah Archer, has written a Regulation 28 Prevention of Future Deaths Report. Report The Times Coroner demands urgent action to prevent further deaths from ME "Deborah Archer, who concluded in the summer that Boothby O’Neill, 27, died of malnutrition as a result of ME, has called on Wes Streeting, NHS officials and other health bodies to take urgent action. She wrote in a Regulation 28 report: “During the course of the inquest the evidence revealed matters giving rise to concern. In my opinion there is a risk that future deaths could occur unless action is taken.”" Article | Archived version | Thread Further coverage: The Times | The Times letter | The Guardian | The Guardian editorial | The Telegraph | Daily Mail | BBC Devon BBC World Tonight (5 min) | Times Radio (6 min) | BBC Breakfast BBC Radio 4 Today (4.5 min) | Sky News (11 min) The BMJ Care for people with severe ME is “nonexistent,” says coroner in call to action (paywalled) BBC 'I'm too tired to chew food but still can't get care for my ME' Trial by Error by David Tuller A summary of the news coverage of the Coroner's report with the observation that "journalists covering the issue have generally accepted at face value the notion that ME is serious disease with potentially fatal consequences".
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Tom Kindlon
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 35 years, severe ME 30 years. @IrishMECFSAssoc trustee 27 years 26 publications in peer-reviewed journals Social media: me-pedia.org/wiki/Tom_Kindlon
1.2k followers69 following3.4k posts
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