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Cyan (Sian)
@cyandippy.bsky.social
She/Her, Thornback, Music Lover, AFOL, Model, Disabled and Chronically ill. Still shielding.
92 followers190 following127 posts
Ccyandippy.bsky.social

I spend most of my time in bed, in silence so being able to do little projects like this (even if it takes me weeks) feels good. #Pride#DisabilityPride#SewingProject#StillShielding#PwME

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Ccyandippy.bsky.social

Wanted to try out a new sewing technique so made myself a cushion cover with the Progress Pride flag on one side and the Disability Pride flag on the other, finished it off with black edging and an invisible zip.

A rectangular shaped cushion with the Progress Pride flag on it. There are horizontal stripes in red, orange, yellow, green, blue and purple with an additional herringbone pattern along the right side featuring black, brown, light blue, pink and white stripes. It's leaning against three heart shaped cushions in purple, pink and blue, all on an olive green sofa with a cream sheepskin rug.
The other side of the rectangular shaped cushion on the same sofa, this side has the Disability Pride flag on it. It has a charcoal grey background with a diagonal band from the top left to bottom right corner, made up of five parallel stripes in softer tones of green, blue, white, yellow and red.
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Ccyandippy.bsky.social

Thanks for that info! Looks like it's not available in the UK, only for nebulisers. Not sure why that is, will add it to the list of things to research when my brain allows.

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Ccyandippy.bsky.social

It's so annoying! I react to everything so I'm lucky my Dr will look for alternatives, the powder is technically meant for kids (6 months to 5 years) but the lower dose is actually better for me too. I hope you find something that helps.

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Ccyandippy.bsky.social

So much awfulness going on everywhere. Feeling pretty useless as I'm still not really functioning... But I have kept myself alive this past week. Might not seem like much but I'm proud of myself.

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Ccyandippy.bsky.social

I've not noticed it make any difference for me. I have inhalers for breathing issues we think are caused MCAS and they help (slightly) with wheezing but I also take Montelukast powder (tablets have lactose that I react to) which helps me a bit with the air hunger.

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Ccyandippy.bsky.social

Yes! Who do I need to pester?! Could finally get the accessible bungalow of my dreams and get to go outside!

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Ccyandippy.bsky.social

My brain isn't up to maths right now but 5 years should add up to a decent amount!

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C
Cyan (Sian)
@cyandippy.bsky.social
She/Her, Thornback, Music Lover, AFOL, Model, Disabled and Chronically ill. Still shielding.
92 followers190 following127 posts