When you get #MECFS you also typically suffer a catastrophic loss of trust in the healthcare system. The safety net you thought was there doesn't exist and you keep on falling and falling.

In addition, family and social surroundings were lost. Lost confidence in your own body.

So true. And it’s hugely discomforting to know you can’t trust doctors. Who can you trust? Who else was I wrong about? Do qualifications mean anything? Are smart ppl really smart??