A reminder about #longcovidkids#LongCovidwww.cidrap.umn.edu/covid-19/not...

Anyone have an oxygen concentrator they love? #NEISvoid #chronicillness

Drumroll please... @putrinolab.bsky.social has arrived! He's one of our very best #longcovid and #mecfs researchers, one who entered the field post-Covid but has learned a ton from the existing knowledge about complex chronic illness. Welcome him with a shower of follows!

I have seen a few scientists (I’m not naming who) recently share that long covid isn’t a big deal & is really rare. Any scientist that shares that misinformation gets an automatic block from me.

I found a recipe on Instagram for "healthy" cookies (match my current diet restrictions) that are pumpkin and spiced and my mom made them for me and it's the first "desert" I've had in months and they were so good!

Study looking at recovery time after a 2-day CPET comparing pwME to healthy controls that don’t exercise. “These data quantitate the prolonged recovery time in ME/CFS” However: “one subject with ME/CFS had not recovered after one year” 😪 #MEcfs t.co/8z2pslytUN

Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Background and Objectives: Post-exertional malaise (PEM) is the hallmark of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), but there has been little effort to quantitate the duration of ...

I really miss feeling like I'm actively building and participating in my life. I feel like a passive bystander watching precious time slip through my fingers. I can't believe I'm already 26. #LongCovid #ME

I cringe thinking about how many doctors I've just stopped seeing because they were useless and how most them probably assume I'm just fine now....

Helpful article on the likelihood of recovery from Long Covid absent the invention of new treatments. It’s especially informative if you’ve felt confused by conflicting headlines on this topic—has some good examples of ways a study’s design can affect what it finds.

Long COVID Recovery Remains Rare

Without proven treatments, many people are still sick.

So we know this isnt true (I scoff in “sick for 3.5 years”) but can someone point Julie to some actual data?