HF
Holly Fernandez Lynch
@hollylynchez.bsky.social
Assistant Professor of Medical Ethics and Law at the University of Pennsylvania. Studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), clinical research ethics and regulation, with a splash of psychedelics.
363 followers160 following196 posts
Today, the National Academies Committee on ALS released our report, "Living with ALS." Our recs focus on an integrated multidisciplinary care and research system to facilitate early diagnosis and connections to specialty care. nap.nationalacademies.org/catalog/2773... (1)
Living with ALS
Read online, download a free PDF, or order a copy in print.
Our hope is that these recs will chart the course for making ALS a livable disease w/i the next 10 years, which was our committee's charge. It was an honor to learn from the members of this expert committee, who care deeply about getting this right for everyone affected by ALS.
HF
Holly Fernandez Lynch
@hollylynchez.bsky.social
Assistant Professor of Medical Ethics and Law at the University of Pennsylvania. Studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), clinical research ethics and regulation, with a splash of psychedelics.
363 followers160 following196 posts