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Holly Fernandez Lynch
@hollylynchez.bsky.social
Assistant Professor of Medical Ethics and Law at the University of Pennsylvania. Studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), clinical research ethics and regulation, with a splash of psychedelics.
363 followers160 following196 posts
HFhollylynchez.bsky.social

Don't miss the many digestible resources available with the report, including 1-pagers for different audiences and policy briefs: www.nationalacademies.org/our-work/amy...

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HFhollylynchez.bsky.social

Out today w/ Glenn Cohen + Peter Lurie. We were responding to Alito + Thomas worrying that maybe no one could sue FDA over mifepristone. But there are lots of ways FDA is held accountable - not only by judges, but also by Congress, the White House, and we the people. jamanetwork.com/journals/jam...

Checks and Balances on FDA’s Authority
Checks and Balances on FDA’s Authority

In this Viewpoint, the authors refute recent suggestions that the US Food and Drug Administration (FDA) is not accountable for its decisions, pointing out

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HFhollylynchez.bsky.social

Our hope is that these recs will chart the course for making ALS a livable disease w/i the next 10 years, which was our committee's charge. It was an honor to learn from the members of this expert committee, who care deeply about getting this right for everyone affected by ALS.

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HFhollylynchez.bsky.social

Today, the National Academies Committee on ALS released our report, "Living with ALS." Our recs focus on an integrated multidisciplinary care and research system to facilitate early diagnosis and connections to specialty care. nap.nationalacademies.org/catalog/2773... (1)

Living with ALS
Living with ALS

Read online, download a free PDF, or order a copy in print.

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HFhollylynchez.bsky.social

Thanks! Just downloaded!

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HFhollylynchez.bsky.social

Join us on June 18 for the release webinar of our new report recommending actions public, private & nonprofit sectors can take to make ALS a livable disease in the next 10 years. Register here: ow.ly/vkz650SheWL

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HFhollylynchez.bsky.social

Totally agreed.

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HF
Holly Fernandez Lynch
@hollylynchez.bsky.social
Assistant Professor of Medical Ethics and Law at the University of Pennsylvania. Studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), clinical research ethics and regulation, with a splash of psychedelics.
363 followers160 following196 posts