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HF
Holly Fernandez Lynch
@hollylynchez.bsky.social
Assistant Professor of Medical Ethics and Law at the University of Pennsylvania. Studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), clinical research ethics and regulation, with a splash of psychedelics.
363 followers160 following196 posts
HFhollylynchez.bsky.social

Don't miss the many digestible resources available with the report, including 1-pagers for different audiences and policy briefs: www.nationalacademies.org/our-work/amy...

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HFhollylynchez.bsky.social

Our hope is that these recs will chart the course for making ALS a livable disease w/i the next 10 years, which was our committee's charge. It was an honor to learn from the members of this expert committee, who care deeply about getting this right for everyone affected by ALS.

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HFhollylynchez.bsky.social

Thanks! Just downloaded!

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HFhollylynchez.bsky.social

Totally agreed.

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HFhollylynchez.bsky.social

Thanks for the rec, just added to my list!

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HFhollylynchez.bsky.social

So helpful! This is exactly what I've been looking for - and my Instagram is just a deluge of ads for what I'm sure are terrible products. Will try the Tozo's :)

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HFhollylynchez.bsky.social

Any bone conduction versions you'd recommend?

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HFhollylynchez.bsky.social

It's funny u posted about this! I've been searching for open ear headphones + they all seem to have terrible reviews. Will try the ones you recommended! (My new year resolution was to listen to audio books and walk every day, so I'm wearing earbuds more than ever and my ears do not appreciate it...)

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HFhollylynchez.bsky.social

I don't think the "accelerated approval pathway is bad." And I'm not asking for perfection, there will be some duds. But patients, even desperate ones, deserve drugs that work - and clear information on which to base their treatment decisions. 4/4

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HF
Holly Fernandez Lynch
@hollylynchez.bsky.social
Assistant Professor of Medical Ethics and Law at the University of Pennsylvania. Studying pharmaceutical policy, access to investigational medicines, IRB quality (www.aereo.org), clinical research ethics and regulation, with a splash of psychedelics.
363 followers160 following196 posts