If a child is born chronically ill - or becomes disabled early in life - they may not understand they’re sick. When your “normal” is pain and suffering from the very early years of your life - you assume it’s the same for everyone else. /3
Disabled people like me know the feeling of being gaslit all too well. You know who else is ignored and disbelieved? Children. They lack agency. It’s down to the adults to protect them. /2
Yup. I didn't realise I #mecfs all my life until Epstein Barr turned it into severe mecfs. And then I looked back at my life & went "Oh. Well, shit. This explains everything. Apparently normal people don't sit in the bath weeping with exhaustion every single morning. That's not a thing. Who knew."
When people who have been abled for much of their lives talk to me about how their bodies are changing due to age and time, I understand, sure, but there is a part of me that wonders if they think about how weird it is for me, someone who has been chronically ill since the age of 11 to hear this
Long COVID patients suffer high rate of autonomic disorders, researchers say globalnews.ca/news/1081866...
October marks Dysautonomia Awareness Month, raising the profile for a condition affecting body functions such as heart rate and sweating. It is common in long COVID patients.
There's a myth that long COVID doesn't affect kids. Because they didn't get severe disease. But the newest research indicates 6 million kids may have long COVID-serious physical & mental problems. This--not lockdowns--can account for historic poor school performance. Read how we can fix this. 🧪🩺
Pediatric long COVID is more common than many thought, and we keep letting kids be reinfected with new variants
A study found that monoclonal antibodies amubarvimab and romlusevimab did not reduce long COVID symptoms. www.technologynetworks.com/immunology/n...
The first randomized clinical trial on monoclonal antibodies' impact on long COVID found that the combination of amubarvimab and romlusevimab did not decrease long COVID symptoms.
NIH-funded study finds long COVID affects adolescents differently than younger children highlandcountypress.com/headlines/ni...
