If a child is born chronically ill - or becomes disabled early in life - they may not understand they’re sick. When your “normal” is pain and suffering from the very early years of your life - you assume it’s the same for everyone else. /3
Disabled people like me know the feeling of being gaslit all too well. You know who else is ignored and disbelieved? Children. They lack agency. It’s down to the adults to protect them. /2
Thank you for this post.
As an organization that supports children with Long Covid, we really appreciate this article. Thank you.
Not medical advice. Simply sharing info. “…antihistamines have shown to be effective in the management of long term symptoms post‐Covid‐19 infection.” pmc.ncbi.nlm.nih.gov/articles/PMC...
Treatment for Long COVID includes medications, lifestyle changes, and therapies like occupational or physical therapy. For example, if a child develops infection-associated POTS or diabetes, treatments would target those conditions.
Thanks for sharing!
This is how you get a swarm of bots swearing children are indestructible, like if you drop them off a tall building they bounce. If you're looking for practical advice, here is the Pediatric Pacing Guide from @meactnet.bsky.social@longcovidfam.bsky.socialwww.meaction.net/resource/pac...
Find #MEAction's original Pacing Guide and Pediatric Pacing and Management Guide for ME/CFS and Long COVID, with translations.
We are an organization that supports long Covid kids. We can assure you that the symptoms are long-term and disabling for many if not most. The pediatric research to date has been very flawed. We’re expecting better research to be published in the next 6 to 9 months.