the kicker of this incredible piece by @betsyladyzhets.bsky.social@loscharlos.bsky.social We're waiting. And suffering while we wait.
In February 2021, the National Institutes of Health launched a new $1 billion initiative to study Long Covid, a chronic disease that has changed the lives of millions of Americans. Three years later, ...
This "Unhappy Holidays" campaign by Long COVID patients and advocates ought to get some pickup from marketing trades like @adweek.bsky.social@thesicktimes.bsky.socialthesicktimes.org/2023/12/26/l...#AdSciComm
There are more workers than ever with a disability due to Long COVID (and increasing remote work). Economists estimate Long COVID has kept 4 million+ out of work in the US, and costs the economy at least $3.7 trillion. You can't fight for worker justice if you ignore COVID.
Social media can be a cruel place. Amidst all the muck, there are glimmers of hope. I wrote about disabled outrage and a recent hashtag I created on Twitter #PodSaveJondisabilityvisibilityproject.com/2024/01/02/d...
This "new normal" of constant reinfection with a disease that carries a high risk of disability is neither sustainable, nor does it resemble what we were told to expect in 2021. Read every word of this piece www.thegauntlet.news/p/how-the-pr...
Continual reinfection was not the "new normal" Biden advertised. How did we get here?
News programs should be giving regular COVID and airborne virus reports, the same way they give regular weather reports. Studies show people will take precautions when virus levels are high, but sadly many wrongly perceive COVID levels to be lower than they really are. www.cdc.gov/mmwr/volumes...
I’m so sorry for your loss Brian — I can not fathom. I met her for the first time 2 weeks ago with Lisa McCorkell for coffee in SF. She was so kind & insightful. So surreal. You two are towering figures in this community ❤️💔
Omg lol too kind — Twitter is dismantling my soul, but still finding bsky a lil wonky tbh, but trying to give it a more time. Appreciate the kind words.
Astonishing visual essay from Giorgia Lupi about her 1374 days with long covid. This captures the experience in a really powerful way. www.nytimes.com/interactive/...
Chronic illness has a way of picking apart your mind and breaking your heart.