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Ody
@odyody.bsky.social
Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at 🐦
234 followers271 following81 posts
Oodyody.bsky.social

Same.

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BBbennessb.bsky.social

power is contextual. our struggles are connected. learning to engage in generative conflict is worth it.

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"In the event of PEM, patients should be urged to reduce their activity and to decrease exacerbating sensory stimuli. Patients with ME/CFS should rest to recover rather than pushing through exacerbated symptoms." -- Grach et al., 2023. www.mayoclinicproceedings.org/action/showP...

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DLluckytran.bsky.social

Healthcare workers don’t decide whether to wear gloves or sterilize equipment based on how many people are hospitalized. They just do it because it protects patients, and every patient has the right to get healthcare without becoming more sick. It should be the same with masks.

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The original diagrams:

Post-exertional malaise: an increase in the severity of symptoms and/or the appearance of new symptoms after physical or cognitive exertion, which may be delayed. Post-exertional malaise is incongruent with experiences of fatigue after overexertion in healthy individuals. PEM symptoms are grouped by the body system in which they present with some common-language descriptions.

Below, a blue wheel with "PEM symptom presentation" in the center has little icons on each spoke to represent different symptoms: sensory, autonomic, cognitive, pain, immune, neuromuscular, energy level, metabolism. At the bottom it says, PEM is not: being more tired than usual after activity; deconditioning; second-day muscle soreness; necessarily relieved by sleep.
Symptom presentation in ME/CFS. While the National Academy of Medicine criteria require post-exertional malaise, fatigue that is not relieved by rest and not in response to increased or unusual activity, unrefreshing sleep, and cognitive and/or orthostatic intolerance with significant functional impairment lasting six months or longer, ME/CFS typically presents with symptoms in all systems.  These symptoms include but are not limited to those below.

Below is an image of the human body with symptoms and arrows.  Fatigue, cognitive dysfunction, unrefreshing sleep, orthostatic intolerance, temperature dysregulation, urinary frequency, myalgia/arthralgia, sensory sensitivities/sensory reactivity, swollen lymph glands, flu-like symptoms, shortness of breath, palpitations or chest pain, appetite changes or nausea, diarrhea/constipation, and post-exertional malaise.
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This study implicate NSP9 in the initiation of #SARSCoV2 RNA synthesis and unravel an unsuspected role of a cellular protein in orchestrating viral RNA production. Nothing spare & No suprise on the destruction of #SARSCoV2 to the host immunity #Maskup😷 & #Getboosted .

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Oodyody.bsky.social

Hi! So good to see you too!

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Oodyody.bsky.social

Thanks, Sage. ♥️ I found it easy to find you - name, handle, 🐘 - very obviously you! ♥️🐘

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Combine this with Far UV, HEPA air purifiers, PCR testing for your staff and your friends, requiring masks for your staff, private schools for your kids, the best healthcare available to man, and God knows whatever else? The rich are staying way, way safer than the general public. Even when unmasked

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Oodyody.bsky.social

Yay! So happy to hear this!

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O
Ody
@odyody.bsky.social
Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at 🐦
234 followers271 following81 posts