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RJ
Rhiann Johns
@serenebutterfly.bsky.social
Blogger documenting life with chronic illness and disability. Aside from posts about the chronic life, I am an avid reader, and a square-eyed binge-watcher of TV and films brainlesionandme.com
3 followers4 following9 posts

Recently had a phone call from my local health board asking me if I still required a referral for #neurology#chronicillness#waiting and being patient!

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RJserenebutterfly.bsky.social

For more information on the book (and maybe buy!) visit Amazon or any other site where you buy your books! www.amazon.co.uk/gp/aw/d/1839...

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RJserenebutterfly.bsky.social

Exciting News! An #essay I have written is going to be published in January! I’m featured in FND Stories: Personal and Professional Experiences of Functional Neurological Disorder. Such an important book highlighting this poorly understood condition and raising much needed awareness

The front cover of FND Stories: Persona and Professional Experiences of Functional Neurological Disorder
A list of names of the contributors to FND Stories including mine - Rhiann Johns!
The first page of my essay in FND Stories entitled Balancing on the Tightrope
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Another example of how you constantly come up against roadblocks and hurdles when living with #chronicillness#chronicpain#disability!

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To help try get me more mobile, the doctor had an idea to refer me to a national exercise referral scheme - only I found out this morning the #symptoms#pain#dizziness are excluding criteria!

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Reposted by Rhiann Johns
JHjoannechocolat.bsky.social

To anyone who needs it today: Read anything you want to, in whatever medium you like. There are no guilty pleasures, no objectively worthless, improving or harmful books. No-one can judge your choice of book, because no-one knows why you’re reading it, or what you choose to take from it.

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Profile banner
RJ
Rhiann Johns
@serenebutterfly.bsky.social
Blogger documenting life with chronic illness and disability. Aside from posts about the chronic life, I am an avid reader, and a square-eyed binge-watcher of TV and films brainlesionandme.com
3 followers4 following9 posts