They called yesterday and it’s scheduled for in two weeks, but the second I got off the phone I felt like I was going to puke the anxiety/PTSD response was so intense. I spent all of yesterday alternating between that feeling and just rage & disbelief towards the specialist. I hate this.
After the exchange I had with the dysautonomia specialist yesterday, I really am battling with feelings of regret re: agreeing to the port — I know I need it to continue the IVIG, but I’m scared it’s going to be a wasted procedure because of her attitude. I have so much medical trauma already…
🫠 This whole thing is exponentially infuriating because if I didn’t need insurance to cover it, I could go to one of those rich people “drip bars” and get hooked up to IV saline just for funsies like they do when they have a hangover or want to improve their skin or whatever!
… wait this is actually a thing? I’m not just imagining it? I have been trying to figure out why the hell it seems like my tongue doesn’t fit anymore and I keep getting bite sores all along the sides and this whole time it might be related to MCAS and long Covid?! 🫠
Adding a screenshot for context and because this is so wild I’m sure there are people that will claim the doctor didn’t say that. It is cropped for privacy reasons but you can see the reply and the use of the word addicted without the personal information being shown.
To the IV fluids. I asked how it was any different than how I’m currently getting IV fluids with every infusion and have not gotten any response.
That is exactly what my best friend said 🙃 like are we seriously quoting dystopian movies to deny patient care now? Is that where we are at?