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Tom Kindlon
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 35 years, severe ME 30 years. @IrishMECFSAssoc trustee 27 years 26 publications in peer-reviewed journals Social media: me-pedia.org/wiki/Tom_Kindlon
1.2k followers69 following3.3k posts
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4/ Extract from the 2021 NICE guideline [NG206] ME/CFS: diagnosis and management quoted in "Supporting people with ME/CFS in hospital" meassociation.org.uk/wp-content/u...#SevereME#SevereMECFS#SevereCFS#VerySevereME

1.17.2 Recognise that symptoms of severe or very severe ME/CFS may mean that:  people need a low-stimulus environment, for example a dark quiet room with interaction at a level of their choice (this may be little or no social interaction)  are housebound or bedbound and may need support with all activities of daily living, including aids and adaptations to assist mobility and independence in activities of daily living (eg. hoist, electric wheelchair)  need careful physical contact when supported with activities of daily living, taking into account possible sensitivity to touch  cannot communicate without support and may need to choose someone to be their advocate and communicate for them  are unable to eat and digest food easily and may need support with hydration and nutrition  have problems accessing information, for example because of difficulty with screens, sound and light sensitivity, headaches affecting their ability to read, or brain fog affecting their concentration.
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5/ "Key considerations when treating people with ME/CFS: Outpatient visits" Extract from "Supporting people with ME/CFS in hospital" meassociation.org.uk/wp-content/u...#MEcfs#CFS#PwME

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TK
Tom Kindlon
@tomkindlon.bsky.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 35 years, severe ME 30 years. @IrishMECFSAssoc trustee 27 years 26 publications in peer-reviewed journals Social media: me-pedia.org/wiki/Tom_Kindlon
1.2k followers69 following3.3k posts
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