Rest now Isla. 18 years old. May 2024. #VerySevereME#MillionsMissing#RadicalChangeForME#GreatestMEdicalScandal#EnoughisEnough#pwME

We've lost another of our own. Another young woman who never got to live her life, never got to fulfil her potential, didn't make it to her 19th birthday. #VerySevereME#MedicalNeglect#GreatestMEdicalScandal#EnoughisEnough#pwME

2/ ANZMES Releases Essential Resource for Healthcare Professionals to Manage Hospital Stays of Severe ME/CFS & #longCOVIDanzmes.org.nz/press-releas...#MyalgicEncephalomyelitis#ChronicFatigueSyndrome#PASC#SevereMECFS#VerySevereME

Am 8. August wird die ihnen und auch der ME/CFS Verstorbenen erinnert. Dieser besondere Tag ist ihnen und ihrem nahezu unvorstellbaren Leid gewidmet. 4/4 #severeME#severeMEday#verysevereme#blueroses#millionsmissing

New for #SevereMEDay2024#SevereME#VerySevereME25megroup.org/wp-content/u...#SevereMEDay

✨Toutes nos pensées aujourd'hui vont vers les malades #EM#SevereMEDay#SevereME#VerySevereME#EncéphalomyéliteMyalgique#MillionsMissingFrance#MECFS#CovidLong#ApresJ20

On #SevereMEday#SevereME#VerySevereME#MEcfs#PwME

#InquestUpdate#VerySevereME Oct 2021. All witnesses who were involved with Maeve's care have now been heard and submissions made by the properly interested parties (NHS Hospital, Local Authority Social Services,

This piece on Special Needs Letter of Intent” & others on site were recommended by an ME caregiver. It’s about “provid[ing] the people who will care for your child when you are gone with detailed info only you know” www.specialneedsplanning.com/parents-guid...#SevereME#VerySevereME#PwME#MEcfs

Parent's Guide to the Special Needs Letter of Intent

A Letter of Intent can provide critically important information to the people who will care for your child when you are gone.

4/ Extract from the 2021 NICE guideline [NG206] ME/CFS: diagnosis and management quoted in "Supporting people with ME/CFS in hospital" meassociation.org.uk/wp-content/u...#SevereME#SevereMECFS#SevereCFS#VerySevereME