SL
Sparrow / Liz
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them
🎶 iii'm still masking 🎶
working on porting more of my body science infodumps and such to:
liminalnest.wordpress.com
#NEISvoid
1.3k followers710 following5k posts
Hopping in to say that Erythromelalgia sometimes affects the face and ears etc, and that is notoriously painful. I have it but mostly in my feet/hands, and I suspect it is triggered by my MCAS It's typically burning/redness that is worse at night or due to temperature changes
THAT is interesting and I have to ask about the timing. I think she said something about that!
FYI, I don't know of anyone with just facial Erythromelalgia, I think the hand and/or foot involvement is mandatory It might be worth double checking CBC for elevated RBCs or hematocrit (note dehydration can artificially increase hematocrit levels). Polycythemia causes redness too
SL
Sparrow / Liz
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them
🎶 iii'm still masking 🎶
working on porting more of my body science infodumps and such to:
liminalnest.wordpress.com
#NEISvoid
1.3k followers710 following5k posts