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Sparrow / Liz
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them 🎶 iii'm still masking 🎶 working on porting more of my body science infodumps and such to: liminalnest.wordpress.com #NEISvoid
1.4k followers719 following5.1k posts
SLuntonuggan.bsky.social

[Death, starvation, medical neglect]

Maeve’s ME/CFS ultimately left her unable to eat or drink and lacking proper care she slowly starved to death. The coroner’s conclusion that “There is no known treatment for ME“, missed the point entirely. So have others who’ve implied that Maeve died of myalgic encephalomyelitis (ME). Maeve was not asking for treatment – she was asking to be kept alive. Other people have been as sick as Maeve and survived. Other people have even been as sick as Maeve and fully recovered. The difference is that they got care – and it wasn’t specialized ME/CFS care or care that could not have been done in a hospital or even at home: they received the kind of care that people who cannot eat or drink get as a matter of course, and that made all the difference.
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SLuntonuggan.bsky.social

If you want to learn more about PEM from Myalgic Encephalomyelitis (ME) or Long COVID or other post viral conditions Here's my starter pack of links: Stop Rest Pace Guide from ME Action www.meaction.net/stoprestpace/youtu.be/XOpyLTyVxco?...

Stop. Rest. Pace.
Stop. Rest. Pace.

If you are new to Long COVID or ME/CFS, it is important to learn how to #StopRestPace.

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SL
Sparrow / Liz
@untonuggan.bsky.social
angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them 🎶 iii'm still masking 🎶 working on porting more of my body science infodumps and such to: liminalnest.wordpress.com #NEISvoid
1.4k followers719 following5.1k posts
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