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Llucibee.bsky.social

Dr Anthony Hemsley, an NHS trust executive, has told a coroner that there is not a single bed anywhere in the country set aside specifically for the treatment of patients with severe ME. #ThereForME#TreatME#MillionsMissing#SevereMEwww.theguardian.com/society/2024...

Not a single bed set aside to treat ME in any UK hospital, says NHS director
Not a single bed set aside to treat ME in any UK hospital, says NHS director

Father of Maeve Boothby O’Neill, who died in 2021, says it is ‘shameful’ that health system is unable to treat the disease

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TKtomkindlon.bsky.social

Interesting to read this part of the personal history of Jenny Wilson, who has had #MyalgicEncephalomyelitiswww.thereforme.uk/p/a-personal...#MEcfs#PwME#MyalgicE

A personal history of ME by Jenny Wilson Part 1: Finding my community Emma Gore-Lloyd and Karen Hargrave Sep 09, 2024 Today’s piece is the first in a series of articles we’ll be sharing from Jenny Wilson. At the age of 19, Jenny’s life was changed by a severe infection that developed into ME, eventually ending her teaching career and plans to become an educational psychologist. Thanks for reading #ThereForME! Subscribe for free to receive new posts and support our work. Subscribed In the 1980s, she founded the Bristol ME Association together with Dr Richard Sykes, who also founded the charity Westcare. She is now based in Devon, where she has chaired the Devon ME Association and facilitates Dr Weir’s private clinic. In her spare time, Jenny enjoys researching and writing on historical topics; in 2021 she published her first book and has three more in the pipeline.
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LClongcovidsupport.bsky.social

📣 The Labour Government has promised to ensure patient safety. Some p/w #LongCovid#ME#ThereForME#WorldPatientSafetyDay@gwynnemp.bsky.social

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LClongcovidadvoc.bsky.social

✉️Letter to Wes Streeting today in The Times Calling for a special #ME#ThereForMe@binitakane.bsky.social#PatientSafetyDayarchive.is/XVxOt

HCW letter_Like all patients, people with ME deserve safe care within the NHS. In the middle is the quote “Like all patients, people with ME deserve safe care within the NHS”; the word “safe” is highlighted in orange. At the bottom, it reads “Healthcare workers' letter to Wes Streeting; World Patient Safety Day 2024; #ThereForME.”
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SFstevefifield.bsky.social

#ThereForME#GreatestMEdicalScandal perhaps?

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SFstevefifield.bsky.social

BENEFITS ASSESSMENT: Say's here you are... Unable to read. But you're not blind? Unable to listen. But you're not deaf? Unable to speak. But you're not dumb? Unable to stand or walk. But you have all your limbs? So I'll find out in 6-8 weeks? #ME#MEcfs#pwME#pwLC#ThereForME

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