Ah okay, it's going to be one of those acid in the head days again, hurrah. #Liquorverlustsyndrom#CSFleak This is never just a normal headache but much more neurological. If you tell a patient that sort of feeling is like a headache or has been there before, it's a disgrace.

Diese Impfung und diese #Lumbalpunktion#chronicpain#csfleak#medibubble

The Complex Path to Intracranial Hypertension and CSF Leak in those with Hypermobility and Dysautonomia; The Theory of Spiky-Leaky Syndrome (March 2024) #hEDS#MECFS#POTS#CCI#CSFleak#MCAS#Pentad#NEISvoid

(PDF) The Complex Path to Intracranial Hypertension and CSF Leak in those with Hypermobility and Dysautonomia; The Theory of Spiky-Leaky Syndrome

PDF | On Mar 15, 2024, Andrew J Maxwell and others published The Complex Path to Intracranial Hypertension and CSF Leak in those with Hypermobility and Dysautonomia; The Theory of Spiky-Leaky Syndrome...

It cannot take our pain away, but on some days we can express it with art. This is a realistic and not romantic view of art and severe illness, and I'm glad to be featured in this piece on spinal #CSFleakspinalcsfleak.org/inspire-your...

#MEcfs#CSFleak

🙋‍♀️ Me. And I know lots of others. Incidence is about 5:100,000 people per year #csfleak

Mein Schlaf ist wieder plötzlich verkürzt. Irgendwann gebe ich auf und gehe online, weil das Kreischen im Kopf braucht Ablenkung. Bin auch nicht böse auf mich dann, sometimes this illness just asks too much discipline. #severeME #CSFleak