Pacing isn't an exact science. Sometimes we deteriorate regardless of how well we manage activity. A whole load of things out of our control may determine illness severity: age, new viral infections, stressful life events, dietary missteps, supplements/medication, environmental factors etc. #MECFS

Neighbors noise…

The limitations of pacing can leave one vulnerable to feeling guilty about deteriorating. I find that very heartbreaking. It takes a lot of emotional work to break away from this internalized patient blaming. (I‘m still struggling)