I have had lovely convos with the developers of the Visible app for #pwME#LongCOVID, but I haven't had personal experience with it. Anyone want to chime in re: what they think? If you don't know/aren't sure what I'm talking about, please reskeet. 😁

Reswhat?

I need an answer to the question, "oh, would you like me to mask?" that is a polite version of "yes, except if you're just going to wear a surgical mask and then get all passive aggressive"

rfh1955.blogspot.com/2024/01/rams...

Ramsay's Response To Beard/McEvedy.

When William Beard and Colin McEvedy had their ‘Reconsideration’ paper published in the 3rd January edition of the British Medical Journal ,...

So excited to share this new episode of Post-Exertional Mayonnaise, out now! Judith lives with severe ME and she and her partner Matthias organised an exhibition of work by #severeMEyoutu.be/hNVl69RivF4?...

Crash! Judith Schossboeck & Matthias Mollner reflect on severe ME art exhibition

In the summer of 2023, Judith who lives with Severe ME and her partner, Matthias, a visual and performance artist, organised an exhibition in a prestigious g...

Reposting with correct day: I'm thrilled to be speaking on FRIDAY at the NIH ME/CFS Research Roadmap workshop on Less-Studied Pathologies, on craniocervical instability and tethered cord and the interrelationship between comorbidities. Please come. event.roseliassociates.com/me-cfs-resea...

Neighbors noise…

Pacing isn't an exact science. Sometimes we deteriorate regardless of how well we manage activity. A whole load of things out of our control may determine illness severity: age, new viral infections, stressful life events, dietary missteps, supplements/medication, environmental factors etc. #MECFS

10/ “healthcare professionals, when they're taught about #suicidality#suicidal thoughts & behaviours, the focus is on depression or other psychiatric illnesses. (contd)”

Do you have ME/CFS? Are you able to travel to Palo Alto, CA for 2 separate visits? If so, please consider taking part in this. Please also highlight to others. #MEcfs#CFS#PwME