Love Ed’s work! A gap I see in covid coverage is a need to hear from the organizers responding to the crisis. There are mask blocs, people organizing for funding & legislation like Long Covid Justice Network. People’s cDC. Berlin Buyers Club. The public needs to hear how they can fight covid.
There are a lot of people, even among experts, in our country who believe long covid and ME are functional disorders. This makes life very hard for us patients. And so little accurate reporting unfortunately.
Hi @edyong209.bsky.social I just shared your opinion piece on Twitter quoting the poem you also quoted. A fellow patient from Finland asked me to pass on her thanks because she is not on Bluesky. I think she felt seen.
I love the idea that maybe sleep is the purpose of your life and being awake is the inconvenient but necessary disturbance.
Alarming thread/convo. A high-profile paper on #LongCovid@lucibee.bsky.social
'The long COVID figure for those at the lowest income levels was a staggering 50%, versus a 29% average for all adults and 22% for those at the highest income levels.' Class had tremendous influence on who got COVID in the first place, and now it's long-term outcomes. Best health care in the world!
The lowest income Californians are more likely to have lingering symptoms, and more likely to lose jobs.
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The UK's Covid inquiry has heard that a major imperfection of standard issue PPE was that, although marketed as 'gender neutral', it was designed for male bodies. This included masks, which even now fail to take account of female-male differences in facial dimensions #Covid#MedicalSexism
NHS England denied there was a problem with unisex equipment. But it was well known that most neither fits nor protects female healthcare workers, says feminist campaigner Caroline Criado Perez
Unfortunately, the authors' conclusion of "some evidence" is contradicted by their conclusion that *all* studies had "unclear or high" risk of bias. There was "no" evidence here, not "some". This is the same as for CBT/GET in #MECFS#pwME
Lupaavaa 😯