Why is it so hard to stop & rest even when a PEM crash is imminent and your body and brain is swimming against an overpowering current.

I desperately need a vacation from my body. #MECFS#LongCovid#PEM

a painting of a man laying on a bed with a stethoscope around his neck

ALT: a painting of a man laying on a bed with a stethoscope around his neck

Sadly, the 2 million ME/CFS patients in the US has increased to between 5-9 million since the pandemic. And no more funding for ME/CFS.

The impact of ME/CFS versus funding Illnesses listed on the bottom if you can't see it: Sickle Cell Disease, Brain Cancer, Parkinson's, Multiple Sclerosis, HIV/AIDS, ME/CFS. From Jeffrey Tran's video (warning: is a bit noisy) www.tiktok.com/@poisedleft/...#MEcfs#CFS#PwME

Question for #pwME#pwLC who are severe. When you’re really sensitive to stimuli, do you have pain all over your body? To me, the pain feels like my body is tearing apart into tiny grains of sand. It’s excruciating and nauseating. Is there anything that helps that?

… she wanted to tell me it was very late & the stand-in cook was occupied 🚻. Poor darling was worried the family wouldn’t eat dinner & all chances of eating a scrap would be lost until tomorrow. Her whole world was collapsing because my daughter needed to pee 🐶🍖😂

My very clever dog came into my room & beckoned me to follow her in a panic. I jumped up & followed because the last time this happened was when she wanted to show me the dead bee that stung her. But this time…

I dread the next cold, flu or COVID infection. I'm more scared of that than anything else. I wish I could live in an infectious free bubble. Both avoiding becoming sicker and actually becoming sicker prevents me from living. No win situation really 🤷🏻‍♀️ #MECFS#LongCovid

Great work by Griffith University. Prof Sonya Marshall-Gradisnik & her team are absolute legends. Shame ABC included Gulf War Illness minimiser Sir Wessley’s opinion. He’s caused so much damage psychologising GWI. www.abc.net.au/news/2024-07...

Ian coughed up 'mucous that tasted like smoke' ever since he served in the Gulf War. He might finally know why

The discovery by Griffith University scientists has given hope to Gulf War veterans that their often-debilitating symptoms will finally be recognised by the medical profession and the Australian gover...

The Pied Butcher Bird