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JD
Jen DressForME
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
138 followers170 following12 posts
JDjengovey.bsky.social

So true. It’s the hardest of lessons. I reframed “giving in” as listening to my body and giving it what it needs. Nurturing. Switching from what the mind wants you to do to what the body actually needs was an important shift for me.

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JDjengovey.bsky.social

I don’t know, but the brain is the biggest user of mitochondrial energy in the body so we can get PEM from it & blood can pool in the legs in pwME because of POTS so maybe that’s why? 🤷🏻‍♀️

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JDjengovey.bsky.social

Oh yes it’s getting pretty bad over there. Most seem to be coming here from the community. So this may be the replacement we’ve been looking for!

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JDjengovey.bsky.social

They dug up a huge chunk of London to improve the water systems that eradicated cholera etc. Building regs & legislation for Legionnaires Disease. Why not invest clean air? Improved health outcomes & also protects from future pandemics & all airbourne pathogens. Lower Co2 levels good for health too.

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JDjengovey.bsky.social

Sorry Jaime. It always autocorrects your name & sometimes it’s just my ME brain….

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JDjengovey.bsky.social

Yes and they don’t trust various scientific papers or basic physics… but they trust some shady conspiracy dude on YouTube who just repeats Koch sponsored propaganda and… memes….

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JDjengovey.bsky.social

Woohoo!!! Too.!!! Funny as I was just searching for Jamie! 😂

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JDjengovey.bsky.social

I don’t miss DMs but bookmarks are so useful!

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JDjengovey.bsky.social

Yay! I just found you! I have the same photo as the other place to help. Lol. I think looking through others follow lists is a good way of finding people. If I’m not under the tree I’m by the tea and donut truck. 😆 🤣

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JDjengovey.bsky.social

Hi Dave! Did not know you were banished. Lol it’s good to be able to have a back up! (It’s Jen Dress For ME)

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JD
Jen DressForME
@jengovey.bsky.social
I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME.
138 followers170 following12 posts