So true. It’s the hardest of lessons. I reframed “giving in” as listening to my body and giving it what it needs. Nurturing. Switching from what the mind wants you to do to what the body actually needs was an important shift for me.

Inaccessibility, failure to accommodate and exclusion of disabled people are not an “inconvenience.” They are hostile acts that impose segregation, isolation, discrimination and trauma upon disabled people.

I don’t know, but the brain is the biggest user of mitochondrial energy in the body so we can get PEM from it & blood can pool in the legs in pwME because of POTS so maybe that’s why? 🤷🏻‍♀️

Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...

Oh yes it’s getting pretty bad over there. Most seem to be coming here from the community. So this may be the replacement we’ve been looking for!

Inadequate medical training and the lack of a biomarker put pressure on #MECFS patients to describe how they feel (mostly to be disbelieved anyway). I don't recall my mum, for example, having to rack her brains to describe what having cancer was like before receiving chemo.

This is so real. I’ve reported on this over the years in many forms. Coral reef scientists. Conservationists caring for endlings. Public health workers in the pandemic. Journalists covering all the above. The people bearing witness are not okay.

I love taking photographs in art galleries. Always fascinating to watch people interact with art. Took these while travelling during the summer #photography#art#galleries

So many folks are sick again so I share this with love: you must rest. Rest won’t guarantee you don’t get long covid but it’s a huge mitigator. Even if you have an accute mild case. Even if you don’t feel it at all. Send this to your boss. Make your partner clean or use disposable dishes etc.

Why You Should Rest—a Lot—If You Have COVID-19

It could help prevent Long COVID

@ravihvj.bsky.social Ravi! So cool to see you here too! 🥳😍😃