This story in the Atlantic is the best public facing write up of how transformative these drugs are that I have ever seen. Most folks following me know that my 9yo has cystic fibrosis, and ,before these drugs, his pancreas didn’t work and he had cirrhosis Now? He’s completely normal
🧪A child born with Cystic fibrosis in the ’50s could expect to live until age 5. In the early 2000s, age 35. With Trikafta, those who begin taking the drug in early adolescence, a recent study projected, can expect to survive to age 82.5—an essentially normal life span.
The disease once guaranteed an early death—but a new treatment has given many patients a chance to live decades longer than expected. What do they do now?
Genuinely miraculous.
That is excellent
Meanwhile just a couple days ago we had people widely sharing a post claiming that technology has stopped advancing except for computers. 🙄 bsky.app/profile/nafn...
I had a cousin with CF. This is incredible. Thanks for sharing.
Truly amazing. My husband has CF, he's 54. These drugs came too late for him and he had to have a transplant 8 years ago. People hear this + think "oh he must be fine now" + it was like a miracle, but average life expectancy is only 7yrs. CF is a terrible disease + we didn't have kids because of it
That’s fantastic news.
I am so happy for you and your little dude and everybody who loves him. It’s wild to be on the other side of a medical breakthrough.
We need to fight for some sort of nationalized health care so your kid can stay on the $300,000 a year drugs for the rest of his life....
This is amazing and I legit knew absolutely nothing about it. I still thought CF was an early death sentence