BLUE
Profile banner
C
Caitlin 🏜 🍰
@sickbaycheese.bsky.social
she/they • Disabled • Soapmaker • Standard Nerd • I love: Star Trek | Golden Girls | coffee | cats | gaming | photo | science #IDIC #hEDS #POTS #MCAS etc.
96 followers213 following478 posts
Csickbaycheese.bsky.social

My right wrist was in excruciating nerve pain for a couple of months and nothing helped. It was awful. I hope your hand pain clears up soon!

1
Csickbaycheese.bsky.social

Ah, I believe I am. Interesting. I also have been bad about taking my supplements lately, one of which is vit K, if that makes a difference.

1
Csickbaycheese.bsky.social

There does need to be proper studies on this because I do believe there's something to it. And I think your line of thinking makes a lot of sense.

0
Csickbaycheese.bsky.social

I can almost smell it! Sounds amazing.

0
Csickbaycheese.bsky.social

I will! I'm going to start methotrexate in about a week or so.

0
Csickbaycheese.bsky.social

Yeah it's not clear! Maybe I'll just cut back and see how that goes.

1
Csickbaycheese.bsky.social

Speaking of food, have you heard of caffeine making methotrexate less effective? I have tried looking I to it and have found a lot of conflicting info, so I'm not sure what to believe.

1
Csickbaycheese.bsky.social

Thank you! I just did the math and realized my last booster was 11 years ago!

0
Csickbaycheese.bsky.social

Well, silver lining! lol My doctor assured me if this medication doesn't go well there are plenty of others. The rough part is finding the right one(s), of course (we're not strangers to that it seems).

0
Csickbaycheese.bsky.social

I just messaged my doctor asking about how how to proceed with getting my annual flu shot, so thank you for that already! Not glad to hear it's hard on the GI tract because everything seems to affect my GI, but now I know it's possible. My diet is already so limited thanks to MCAS. *cries*

1
Profile banner
C
Caitlin 🏜 🍰
@sickbaycheese.bsky.social
she/they • Disabled • Soapmaker • Standard Nerd • I love: Star Trek | Golden Girls | coffee | cats | gaming | photo | science #IDIC #hEDS #POTS #MCAS etc.
96 followers213 following478 posts