#NEISvoid#POTS#EDS#IVIG#MCAS

So infuriating!! It happened to me a year ago. I did manage to get another doctor to pick up my scrip for IV saline, but it was a rough time in the interim. In my situation, the dr started citing some local cardiologist (who had a rudimentary understanding of POTS) that it's bad. 😤

most people are dehydrated anyway, why wouldn’t you just let them have a little extra hit of hydration that THEY’RE paying for

I'm so sorry you're dealing with this. I have dealt with this from one appointment to the next but not in portal messages ugh It's so hard No advice just sympathy