NEJM: “Intention to treat - What Exactly Is Long Covid?” Podcast presenting two cases of patients with long Covid and a discussion with president of the Longhauler Advocacy Karyn Bishop and Dr. Wesley Ely #LongCovid#PASC
interesting as I was just handed an order for chest imaging by my PCP that states "Covid-19 longhauler with chronic fatigue" and a prescription "push fluids, Tylenol if needed, stay up late if you want, sleep whenever you want, your body knows" so basically what I always do anyway.
Bathing in the pinky-purple glow of closed eyes - from my photo project about ME/CFS glass.photo/andrewgiffor...#MECFS#pwME#Spoonies#LongHauler
Andrew Gifford on Glass
September sunlight is back on the sofa - from my photo project about ME/CFS glass.photo/andrewgiffor...#MECFS#pwME#Spoonies#LongHauler#MECFSart#MECFSPhotography
Andrew Gifford on Glass
Sofa bound on a sunny day - from my photo project about ME/CFS glass.photo/andrewgiffor...#MECFS#pwME#LongHauler#MECFSart#MECFSphotography
Andrew Gifford on Glass
Timmy the lonely budgie - from my photo project about ME/CFS glass.photo/andrewgiffor...#MECFS#pwME#LongHauler#MECFSart#MECFSphotography
Andrew Gifford on Glass
Valaciclovir - anti viral drug - for ME/CFS: what dosage have you found effective (if any)? Asking for a me. My GP has cautiously started me on 500mg daily. The one small scale trial was using 4g daily. drmyhill.co.uk/wiki/Valacyc...#MECFS#pwME#LongHauler
You wanna read some stuff I write? Subscribe to my free Substack. It’s ad hoc on life and all the catastrophes therein #substack#longhauler#longcovid#music#books#trying#writingopen.substack.com/pub/roxannek...
i remember damage
Anyone know what evidence-based treatments for ME/CFS the NHS is open to exploring? I'm concerned that the Bristol CFS clinic is going to lean into "if it's not spelled out by NICE we ain't trying to get you well", (besides physio, OT and talking therapy). Thanks! #MECFS#pwME#NHS#LongHauler
Six summer-themed photographs about ME/CFS andrewgiffordphotography.substack.com/p/six-summer...#MECFS#MECFSart#MECFSphotography#LongHauler#pwME#photography
Still mid-way through photo project about Myalgic Encephalomyelitis - aka ME/CFS, ME or Chronic Fatigue Syndrome. I hope these mini series are enjoyable.