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JRjrboehnke.bsky.social

Really glad how our symposium around Leah McClimans' book " #PatientCentered#Measurementglobal.oup.com/academic/pro...#ISOQOL#HRQL

Symposium 4: Patient-Centered Measurement: Perspectives from philosophy and health-related quality of life Moderator and Discussant: Leah McClimans, PhD, University of South Carolina, Columbia, South Carolina, United States Patient-reported measurement is the idea that patient perspectives should play an evidentiary role in determining how effective a drug is taken to be, the degree to which a hospital provides good quality care or improvements in patient-clinician communication. This idea may sound prosaic, but in fact it’s nothing short of revolutionary. It says, patient views matter – not as an afterthought, and not only at the bedside, but in the nuts and bolts of creating our evidence base, and thus in health-care decision-making. But patient-reported measures present a puzzle: How can measurement, which relies on standardization, represent patient perspectives, which, if not idiosyncratic are at least various and changeable? This tension is explored in Patient-Centered Measurement (McClimans, L 2024, Oxford University Press) a recent book that combines philosophy and conceptual questions from HRQoL research. This symposium brings “all different together” four HRQoL researchers and four philosophers into dialogue with one another as they discuss their different perspectives on four chapters of this book. This symposium thus creates a multi-directional dialogue: between HRQoL researchers and this text, between HRQoL researchers and other philosophers, and between the HRQoL community and philosophical concepts. Individual Presentations (order of appearance) Melanie Hawkins Sebastian Rodriguez Duque Jan R. Boehnke Alessandra Basso Richard Sawatzky Leah McClimans Kevin Weinfurt Rebecca L. Jackson
Picture of a woman (Leah McClimans) holding a mic, standing behind a lectern, and pointing to a screen on which the title of the symposium is presented: Patient-Centered Measurement: Perspectives from philosophy and health-related quality of life And the individual presenters (here in order of appearance) Melanie Hawkins Sebastian Rodriguez Duque Jan R. Boehnke Alessandra Basso Richard Sawatzky Leah McClimans Kevin Weinfurt Rebecca L. Jackson And the book front of Leah McClimans' book Patient-Centered Measurement Ethics, Epistemology, and Dialogue in Contemporary Medicine
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AJacr-journals.bsky.social

Results of a survey of youth with juvenile idiopathic arthritis and their parents suggest the importance of fostering youth pain acceptance and incorporating parents in psychosocial interventions to promote resilience In AC&R acr.tw/3Bgno7R

Summary of the Significance of Each Predictor between Correlational and Regression Analyses Across Models. HRQoL = Health related quality of life; P = Parent; Y = Youth. “Important” = Relative importance (RI) ≥ +.05 and both standardized coefficients are significant. “Potentially Important” will have a RI ≥ +.05 and one significant standardized coefficient. “Not Important” = RI values between -.05 and +.05 and neither standardized coefficient is significant. “Inconclusive” = All other cases where RI < +.05 but at least one of the two coefficients is statistically significant.
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DMdr.maeker.fr

CONCLUSION: the HBE programmes carried out by DHI improve physical function in terms of lower extremity strength and functional capacity. It also significantly reduces the number of falls and improves the HRQoL. In addition, in analysis of only older adults with diseases, 5/6

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Ddiamondqc.bsky.social

I don't have the spoons rn for a long thread but it's not hard to demonstrate how egregious Nath's statement is there are multiple studies that evidence the similarities between #LongCovid#ME and others that show these diseases have very similar HRQoL (Health-Related Quality of Life) outcomes 👇

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TKtomkindlon.bsky.social

4/ “We highlight the need for continued support and research for long COVID, as HRQoL scores compared unfavourably to patients with conditions such as multiple sclerosis, heart failure, and renal disease” #LongCovid#PwLC

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