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TKtomkindlon.bsky.social

10/ 💬Mindful Communication💬 Healthcare professionals - you can improve experiences. Provide clear and compassionate communication. Involve family and caretakers in decision-making processes. If patients can tolerate conversation, speak slowly and quietly. #SevereME#MedTwitter

Image of two people talking.
Text reads: Safe hospital care for severe ME. Allow extra time for processing speech and decision making. #SevereMEDay August 8th. World ME Alliance.
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DGdgmecfs.bsky.social

🎥 5-minütiger Bericht des Hessischen Rundfunks am gestrigen #SevereMEDay#MECFS#LiegendDemo#RollstuhlDemowww.ardmediathek.de/video/ZjY4Nm...

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Am 8. August wird die ihnen und auch der ME/CFS Verstorbenen erinnert. Dieser besondere Tag ist ihnen und ihrem nahezu unvorstellbaren Leid gewidmet. 4/4 #severeME#severeMEday#verysevereme#blueroses#millionsmissing

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TKtomkindlon.bsky.social

8/ 💊Medication Management for Safer Hospital Care💊 Accommodate extreme sensitivities in people with ME. Start medications one at a time and taper up slowly to avoid potential adverse reactions to drugs. buff.ly/46wv5lD#MECFS#SevereMEDay

Image of some tablets.
Text reads: Start medications one at a time and taper up slowly.. #SevereMEDay August 8th. World ME Alliance.
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Kkeristars.bsky.social

for #SevereMEDay, a cautionary tale: it can creep up on you, or it can come fast. I was in a loop of PEM, not allowing myself to fully recover to baseline before triggering another crash. the difference between my summer and winter 2021 is stark. Rest, rest, rest. Care for yourself now, not later.

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