“Worse, when we don’t ignore them, we blame them, telling them that they are all free to rise from their beds and wheelchairs, to walk away from the city.” This. We treat ME patients appallingly. Too often when doctors don’t understand something - it’s “all in your head” /1
A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ⬇️ theconversation.com/ignored-blam...
The co-lead of the world’s largest ever genetic study into ME calls for a radical change in how society deals with the disease.
You will be forced to suffer in unimaginable ways as an attempt to “prove” you could get better if you wanted. Many ME patients slowly starve to death because they can’t eat/digest - yet are refused feeding tubes because doctors think “when they’re hungry enough they will eat” /2