A personal viewpoint on #MECFS#pwMEtheconversation.com/ignored-blam...

Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical ‘scandal’

The co-lead of the world’s largest ever genetic study into ME calls for a radical change in how society deals with the disease.

Phenomenal read Chris, thank you! You've no idea how buzzed I get when I think about my DNA being part of the GWAS you're working on, that study has had an amazing positive effect on me and IMHO, the community. Good luck as you work towards publication!

Thank you so very much!

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Thank you Chris. I’m the parent of a young man with MECFS. He has had it since he was 12 and is mostly housebound or bedbound. He’s now 19 and has missed out on so much.

Thank you Chris 🙏

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Excellent article... saying the all things that need to be said... I have 30+yrs experience of mild #MECFS... a life of pacing myself carefully... means that I wasn't sick enough to contribute my dna to the decode me study... I look forward to hearing the results of this & any long covid studies...

Thank you so much!