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Jessika
@jessikafe.bsky.social
ME sufferer from Sweden. Interested in everything that can make us/our situation better. #ME #ME/CFS
32 followers34 following16 posts
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TKtomkindlon.bsky.social

"Stem cells used to identify doping drug as potential chronic fatigue [syndrome] treatment" cosmosmagazine.com/health/medic...#MyalgicEncephalomyelitis#ChronicFatigueSyndrome#MEcfs#CFS#PwME

Most recently, the team discovered the drug trimetazidine could prove to be a game-changer for people with chronic fatigue syndrome. The medication works by increasing energy generation in the mitochondria of the cell and is listed in the World Anti-Doping Agency’s (WADA) List of Prohibited Substances and Methods. “What’s interesting is that it only enhances energy generation under load and if there’s abnormality. It doesn’t do it at rest, which is a very desirable effect of the medication because you don’t want it to rev you up the way that amphetamines do,” says Berk. “We think that this is going to be attractive [for chronic fatigue syndrome] because it is essentially an energy problem, and we have an energy treatment. We’re still going through the regulatory approval processes, and hopefully we’ll be able to start up a pilot study fairly soon.”
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TKtomkindlon.bsky.social

New from Canada: Exploring the role of galectin-9 and artemin as biomarkers in #longCOVID#ChronicFatigueSyndromewww.frontiersin.org/journals/imm...#PASC#COVIDBrain#MEcfs#CFS

This study aimed to assess plasma galectin-9 (Gal-9) and artemin (ARTN) concentrations as potential biomarkers to differentiate individuals with Long COVID (LC) patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) from SARS-CoV-2 recovered (R) and healthy controls (HCs). Receiver operating characteristic (ROC) curve analysis determined a cut-off value of plasma Gal-9 and ARTN to differentiate LC patients from the R group and HCs in two independent cohorts. Positive correlations were observed between elevated plasma Gal-9 levels and inflammatory markers (e.g. SAA and IP-10), as well as sCD14 and I-FABP in LC patients. Gal-9 also exhibited a positive correlation with cognitive failure scores, suggesting its potential role in cognitive impairment in LC patients with ME/CFS. This study highlights plasma Gal-9 and/or ARTN as sensitive screening biomarkers for discriminating LC patients from controls. Notably, the elevation of LPS-binding protein in LC pati
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TCtyrotcm.bsky.social

ME/CFS gets miniscule funding relative to the number of people it affects. Without more funding, this will only get worse as more and more people develop Long COVID, one potential symptom of which is ME/CFS.

TKtomkindlon.bsky.social

The impact of ME/CFS versus funding Illnesses listed on the bottom if you can't see it: Sickle Cell Disease, Brain Cancer, Parkinson's, Multiple Sclerosis, HIV/AIDS, ME/CFS. From Jeffrey Tran's video (warning: is a bit noisy) www.tiktok.com/@poisedleft/... #MEcfs #CFS #PwME

2 graphs comparing the prevalence rates and funding for the following conditions: Sickle Cell Disease, Brain Cancer, Parkinson's, Multiple Sclerosis, HIV/AIDS, ME/CFS
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TKtomkindlon.bsky.social

Resources on Orthostatic Intolerance from Dr. Peter Rowe Image from MassME September 2024 e-newsletter Links in image www.youtube.com/@meactmarylandwww.press.jhu.edu/books/title/...www.amazon.com/Living-Well-...#OI#OrthostaticIntolerance#POTS#MEcfs

Resources on Orthostatic Intolerance from Dr. Peter Rowe Dr. Peter Rowe at Johns Hopkins University is a world-renowned expert on orthostatic intolerance, especially in children and adolescents. He generously shares his expertise through a webinar series, available on YouTube through the #MEAction Maryland channel. The first webinar covers management of pediatric ME/CFS and the second covers management of orthostatic intolerance. He has also recently published an updated book called Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment. It is available from Johns Hopkins University Press and Amazon, or ask your library to purchase a copy.
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Jjessikafe.bsky.social

Att det i genomsnitt tar 8,5 ÅR att fĂ„ den kroniska ME diagnosen (möjlighet att fĂ„ sjukersĂ€ttning) och undertiden fĂ„r man felaktigt t.ex. utmattningssyndrom dĂ„ man kan bli bĂ€ttre.

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Jjessikafe.bsky.social

Ett omtag av @socialstyrelsen riktlinjer för ME behövs brÄdskande. www.dagensmedicin.se/opinion/deba...

”Allvarliga brister i nytt kunskapsstöd om ME”
”Allvarliga brister i nytt kunskapsstöd om ME”

Riksförbundet för ME-patienter krÀver svar pÄ varför Socialstyrelsen har exkluderat experter inom ME-fÀltet och bortsett frÄn relevant vetenskaplig litteratur.

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Jjessikafe.bsky.social

RME (Riksförbundet för ME-patienter) har nu skickat in sin skrivelse till #socialstyrelsenrme.nu/socialstyrel...

Socialstyrelsen mÄste Àndra sina felaktiga riktlinjer för ME-vÄrden
Socialstyrelsen mÄste Àndra sina felaktiga riktlinjer för ME-vÄrden

I onsdags, den 4 september, skickade RME en skrivelse till Socialstyrelsen samt till sjukvÄrds- och socialministern med synpunkter pÄ det uppdaterade kunskapsstödet för ME och andra postinfektiösa til...

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TKtomkindlon.bsky.social

Discriminatory biomarkers Galectin-9 and Artemin in Long COVID with chronic fatigue syndrome: Correlation with inflammatory and cognitive markers www.frontiersin.org/journals/imm...#LongCovid#MEcfs#CFS#PwME

Screenshot of abstract
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DDd2p.bsky.social

"Together our ïŹndings suggest that in patients with #POTS#MECFS#LongCovidwww.sciencedirect.com/science/arti...

Reduced Stroke Volume and Brain Perfusion Drive Postural Hyperventilation in Postural Orthostatic Tachycardia Syndrome
Reduced Stroke Volume and Brain Perfusion Drive Postural Hyperventilation in Postural Orthostatic Tachycardia Syndrome

Postural hyperventilation has been implicated as a cause of postural orthostatic tachycardia syndrome (POTS), yet the precise mechanisms underlying th


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Jjessikafe.bsky.social

Please do not. The most important thing is that they are held. And that progress is being made. 💕 I guess we are all impatient due to the catastrophic situation that we are in.

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J
Jessika
@jessikafe.bsky.social
ME sufferer from Sweden. Interested in everything that can make us/our situation better. #ME #ME/CFS
32 followers34 following16 posts
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