No one ever sees the world of color that lives inside of me because the black void doesnāt let it outā¦The only thing anyone ever sees are the bits of dust of a broken down machineā¦ New post on my blog: www.whitneydafoe.com/mecfs/?post=...#MECFS#LongCovid
No one ever sees the world of color that lives inside of me because the black void doesnāt let it out. I feel it, smell it, taste it. I exist there in every moment of my life. But the only thing an...
I wish there was a treatment to stop crashes. That alone would make our lives so much better. Like I always say, even a .1% increase in my health would result in a HUGE increase in my QOL. I wouldnāt need a cure to get a life back. We are not asking for miracles just decency.
Karen Gordon is being held hostage at an NHS hospital with a now 24 hour ultimatum between 2 choices that will both kill her. New post on my blog: whitneydafoe.com/mecfs/?post=...#SaveKaren#NHSmurdersMEpatients
A Severe ME/CFS Patient in the UK named Karen Gordon went to the Conquest Hospital Hastings when her Jtube broke in hopes of getting a new one installed. Instead, the hospital has refused to give her ...
I got TPN and lived. Maeve Boothby OāNeill was denied TPN and died. #MECFS#MauveInquest#severemecfsawarenessdaywww.whitneydafoe.com/mecfs/?post=...
Maeve Boothby OāNeill died not because her stomach stopped accepting food (severe gastroparesis, a well known condition), or because her doctors did not know how to treat severe gastroparesis (they di...
The Supreme court ruled that itās [illegal] to sleep in public spacesā¦countless cities are sure to follow suit in the USAā¦This has profound consequences for #MECFS#LongCovidwww.whitneydafoe.com/mecfs/?post=...
After the Supreme court ruled that it was constitutional to make it illegal to sleep in public spaces, countless towns and cities are sure to follow suit in the United States and make it illegal to sl...
I havenāt felt the wind on my back in 11 years. But I still feel freeā¦We are not our circumstances. This physical world does not define us nor can it confine usā¦. New post on my blog: www.whitneydafoe.com/mecfs/?post=...#mecfsawarenessday#mecfs#SevereMECFS#pwME#LongCovid#ChronicIllness
I havenāt felt the wind on my back in 11 years. But I still feel freeā¦We are not our circumstances. This physical world does not define us nor can it confine us. We are infinite beingsā¦This year on ...
None of us are ever really alone; Through the walls of darkened rooms, the thick cloth of eye masks and the confinement of our homes, we are one. Suffering together. And never alone. Love, Whitney ā¤ļø 2/2 #mecfs#SevereMECFS#pwME#LongCovid#Disability#ChronicIllness
An anthem for ME/CFS and Long Covid patients. YOU ARE NOT ALONE. Ā songwhip.com/allison-russ...#mecfsawarenessday
šā¤ļøā¤ļø
Look, another Vagus Nerve stimulator, maybe this one works! Oooooh look a device that puts pressure on your inner ear and eliminates migraines. oooh! A grounding mat that sounds like it would help me! Buy it all now! š And then go back to feeling sick š #stupidconsumer